Your Oracle chats appear here once you're signed in.
Sign up
We call on the Government to fund universal, NHS access to the life-extending medication Tofersen for all people who have been diagnosed with SOD-1 Motor Neuron Disease.
React
Members can read every reason.
NHS-funded rehabilitation to be made more accessible for FND patients
I want the Government to make NHS-funded help for FND more widespread so that it can be accessed in more places, such as in Milton Keynes
Fund more NF1 specialists and regular monitoring and support for NF1 patients
Provide funding for more Neurofibromatosis type 1 (NF1) specialists. Currently only two locations provide care. Monitoring is limited to yearly checks. My husband was diagnosed in 2018, had no follow-up, his NF1 tumour became cancerous (MPNST). He sadly passed on Christmas Eve 2025.
Fund an NHS fast-track route for ADHD & autism diagnoses and treatment
We urge the Government to fund a fast-track route in the NHS for ADHD and autism diagnoses and treatment, to ensure urgent access to care, regardless of whether diagnosed privately or publicly. We believe no one should face delays, gaps in medication, or be denied essential support.
Fund training on Neurofibromatosis and Functional neurological disorder
Fund training for doctors to further understand the basics of Neurofibromatosis and function neurological disorder so patients can receive better help without needing to be transferred to a specialist which could be miles away.
Fund free prescriptions for people with Multiple Sclerosis (MS)
We want the government to fund free prescriptions for people with Multiple Sclerosis (MS). MS is a condition that affects nerves in your central nervous system. It stays with you for life and is life changing.
We call on the Government to fund universal, NHS access to the life-extending medication Tofersen for all people who have been diagnosed with SOD-1 Motor Neuron Disease.
React
Members can read every reason.
NHS-funded rehabilitation to be made more accessible for FND patients
I want the Government to make NHS-funded help for FND more widespread so that it can be accessed in more places, such as in Milton Keynes
Fund more NF1 specialists and regular monitoring and support for NF1 patients
Provide funding for more Neurofibromatosis type 1 (NF1) specialists. Currently only two locations provide care. Monitoring is limited to yearly checks. My husband was diagnosed in 2018, had no follow-up, his NF1 tumour became cancerous (MPNST). He sadly passed on Christmas Eve 2025.
Fund an NHS fast-track route for ADHD & autism diagnoses and treatment
We urge the Government to fund a fast-track route in the NHS for ADHD and autism diagnoses and treatment, to ensure urgent access to care, regardless of whether diagnosed privately or publicly. We believe no one should face delays, gaps in medication, or be denied essential support.
Fund training on Neurofibromatosis and Functional neurological disorder
Fund training for doctors to further understand the basics of Neurofibromatosis and function neurological disorder so patients can receive better help without needing to be transferred to a specialist which could be miles away.
Fund free prescriptions for people with Multiple Sclerosis (MS)
We want the government to fund free prescriptions for people with Multiple Sclerosis (MS). MS is a condition that affects nerves in your central nervous system. It stays with you for life and is life changing.
