Review the evidence and fund the addition of SMA to the Newborn Screening Test
We urge the UK Government to fund and help fast-track the process to add SMA to the NHS newborn heel-prick test. SMA is a rare genetic condition with devastating consequences if not treated early. Every baby should be screened at birth to allow early diagnosis and access to life-changing treatment.
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Fund new-born screening and more treatment for MPS Hurler syndrome
Improve early diagnosis and access to treatment for children with MPS Hurler syndrome, including clearer referral pathways and new-born screening, so children are not diagnosed too late to benefit from treatment.
Review the evidence and fund the addition of SMA to the Newborn Screening Test
We urge the UK Government to fund and help fast-track the process to add SMA to the NHS newborn heel-prick test. SMA is a rare genetic condition with devastating consequences if not treated early. Every baby should be screened at birth to allow early diagnosis and access to life-changing treatment.
React
Where do you stand on this motion?
See what others are saying
Members can read every reason.
Similar motion
Fund new-born screening and more treatment for MPS Hurler syndrome
Improve early diagnosis and access to treatment for children with MPS Hurler syndrome, including clearer referral pathways and new-born screening, so children are not diagnosed too late to benefit from treatment.