Review the evidence and fund the addition of SMA to the Newborn Screening Test
National
·151,616 contributorsWe urge the UK Government to fund and help fast-track the process to add SMA to the NHS newborn heel-prick test. SMA is a rare genetic condition with devastating consequences if not treated early. Every baby should be screened at birth to allow early diagnosis and access to life-changing treatment.
Wes Streeting
Health Secretary
Early screening prevents late diagnoses
Severe infant mortality from untreated SMA
Early treatment before symptoms
Irreversible mobility breathing swallowing damage
Early diagnosis prevents severe disability
Similar motions
Review the evidence and fund the addition of SMA to the Newborn Screening Test
National
We urge the UK Government to fund and help fast-track the process to add SMA to the NHS newborn heel-prick test. SMA is a rare genetic condition with devastating consequences if not treated early. Every baby should be screened at birth to allow early diagnosis and access to life-changing treatment.
Early screening prevents late diagnoses
Severe infant mortality from untreated SMA
Early treatment before symptoms
Irreversible mobility breathing swallowing damage
Early diagnosis prevents severe disability