Fund new-born screening and more treatment for MPS Hurler syndrome
Improve early diagnosis and access to treatment for children with MPS Hurler syndrome, including clearer referral pathways and new-born screening, so children are not diagnosed too late to benefit from treatment.
Wes Streeting
Health Secretary
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Fund more NF1 specialists and regular monitoring and support for NF1 patients
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Fund an NHS fast-track route for ADHD & autism diagnoses and treatment
Review the evidence and fund the addition of SMA to the Newborn Screening Test
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Fund new-born screening and more treatment for MPS Hurler syndrome
Improve early diagnosis and access to treatment for children with MPS Hurler syndrome, including clearer referral pathways and new-born screening, so children are not diagnosed too late to benefit from treatment.
Similar motions
Fund more NF1 specialists and regular monitoring and support for NF1 patients
Increase funding for MND research
Fund an NHS fast-track route for ADHD & autism diagnoses and treatment
Review the evidence and fund the addition of SMA to the Newborn Screening Test
Increase funding for rare cancer research & treatment