Fund new-born screening and more treatment for MPS Hurler syndrome
Improve early diagnosis and access to treatment for children with MPS Hurler syndrome, including clearer referral pathways and new-born screening, so children are not diagnosed too late to benefit from treatment.
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Fund more NF1 specialists and regular monitoring and support for NF1 patients
Provide funding for more Neurofibromatosis type 1 (NF1) specialists. Currently only two locations provide care. Monitoring is limited to yearly checks. My husband was diagnosed in 2018, had no follow-up, his NF1 tumour became cancerous (MPNST). He sadly passed on Christmas Eve 2025.
Increase funding for MND research
Many people are being diagnosed with MND. More Government funding for research is needed.
Fund an NHS fast-track route for ADHD & autism diagnoses and treatment
We urge the Government to fund a fast-track route in the NHS for ADHD and autism diagnoses and treatment, to ensure urgent access to care, regardless of whether diagnosed privately or publicly. We believe no one should face delays, gaps in medication, or be denied essential support.
Review the evidence and fund the addition of SMA to the Newborn Screening Test
We urge the UK Government to fund and help fast-track the process to add SMA to the NHS newborn heel-prick test. SMA is a rare genetic condition with devastating consequences if not treated early. Every baby should be screened at birth to allow early diagnosis and access to life-changing treatment.
Increase funding for rare cancer research & treatment
I was diagnosed with a rare cancer in 2022, since then I have met other patients in the same situation.
Fund new-born screening and more treatment for MPS Hurler syndrome
Improve early diagnosis and access to treatment for children with MPS Hurler syndrome, including clearer referral pathways and new-born screening, so children are not diagnosed too late to benefit from treatment.
React
Where do you stand on this motion?
See what others are saying
Members can read every reason.
Similar motions
Fund more NF1 specialists and regular monitoring and support for NF1 patients
Provide funding for more Neurofibromatosis type 1 (NF1) specialists. Currently only two locations provide care. Monitoring is limited to yearly checks. My husband was diagnosed in 2018, had no follow-up, his NF1 tumour became cancerous (MPNST). He sadly passed on Christmas Eve 2025.
Increase funding for MND research
Many people are being diagnosed with MND. More Government funding for research is needed.
Fund an NHS fast-track route for ADHD & autism diagnoses and treatment
We urge the Government to fund a fast-track route in the NHS for ADHD and autism diagnoses and treatment, to ensure urgent access to care, regardless of whether diagnosed privately or publicly. We believe no one should face delays, gaps in medication, or be denied essential support.
Review the evidence and fund the addition of SMA to the Newborn Screening Test
We urge the UK Government to fund and help fast-track the process to add SMA to the NHS newborn heel-prick test. SMA is a rare genetic condition with devastating consequences if not treated early. Every baby should be screened at birth to allow early diagnosis and access to life-changing treatment.
Increase funding for rare cancer research & treatment
I was diagnosed with a rare cancer in 2022, since then I have met other patients in the same situation.