We urge the Government to recognise the growing cohort of autistic children with a Pathological Demand Avoidance (PDA) profile who are unable to attend school safely.
React
Members can read every reason.
Make mental health support standard for parents of seriously ill children
Parents of seriously ill children should be offered proactive mental health support from diagnosis, through treatment, and in grief. Unlike perinatal parents, they get no dedicated help. We want this support made a standard part of every child’s care.
Review need for a national standard of care for children with cerebral palsy
NHS England introduced a Cerebral Palsy Commissioning Framework in 2025, but it has only been piloted in some Integrated Care Boards and not adopted nationwide.
Fund more reasonable adjustments in NHS primary care for autistic people
We want the Government to provide funding to strengthen and enforce more reasonable adjustments in NHS primary care. This could include flexible appointments, longer consultations, quieter options, remote consultations, and home visits where surgery attendance is not possible.
Create a National Strategy for Childhood Apraxia Of Speech (CAS)
We want the Government to create and fund a National Strategy for CAS, which should include: - Increase education of CAS. - Set up and fund a working group of experts and families to advise Government. - Create a strategy across health and education sectors, similar to autism and dyslexia.
Parent seeking SEN social groups for autistic child
A parent is looking for community groups or networks where their autistic teenager can socialise with other children with special educational needs. Existing provisions do not meet their scheduling requirements.
We urge the Government to recognise the growing cohort of autistic children with a Pathological Demand Avoidance (PDA) profile who are unable to attend school safely.
React
Members can read every reason.
Make mental health support standard for parents of seriously ill children
Parents of seriously ill children should be offered proactive mental health support from diagnosis, through treatment, and in grief. Unlike perinatal parents, they get no dedicated help. We want this support made a standard part of every child’s care.
Review need for a national standard of care for children with cerebral palsy
NHS England introduced a Cerebral Palsy Commissioning Framework in 2025, but it has only been piloted in some Integrated Care Boards and not adopted nationwide.
Fund more reasonable adjustments in NHS primary care for autistic people
We want the Government to provide funding to strengthen and enforce more reasonable adjustments in NHS primary care. This could include flexible appointments, longer consultations, quieter options, remote consultations, and home visits where surgery attendance is not possible.
Create a National Strategy for Childhood Apraxia Of Speech (CAS)
We want the Government to create and fund a National Strategy for CAS, which should include: - Increase education of CAS. - Set up and fund a working group of experts and families to advise Government. - Create a strategy across health and education sectors, similar to autism and dyslexia.
Parent seeking SEN social groups for autistic child
A parent is looking for community groups or networks where their autistic teenager can socialise with other children with special educational needs. Existing provisions do not meet their scheduling requirements.