Education
Infected Blood Compensation Scheme
“As the hon. Member for Eltham and Chislehurst (Clive Efford) did, I thank the Backbench Business Committee for granting this debate. I pay tribute to him for securing it and for all his work with the all-party parliamentary group on haemophilia and contaminated blood. He puts an awful lot of work into it—it is not like a normal APPG—and we are all very grateful. This scandal is of such a scale that probably every MP has at least one constituent who has been infected or affected, but in my constituency it has a particular weight attached to it because East Hampshire is home to Treloar’s school and college. Treloar’s is an internationally recognised centre of excellence in which incredibly committed people provide the most remarkable level of support, care, nurture and education for children and young people with some of the most profound disabilities imaginable, but it was also the place where, in the 1970s and 1980s, there was the single biggest concentration of people who were victims of these terrible practices. The reason was that at any one time there were 40 to 50 haemophiliac patients there. It was seen as an opportunity to study the disease; the NHS haemophilia centre was established nearby, and it later moved into the school grounds. Treloar’s looms large in Sir Brian Langstaff’s report: an entire section is given over to it. It describes how research objectives were put ahead of the interests of children and how those children were subjected to unethical research techniques, without them or their parents being informed or consulted about the risks attached. As the hon. Gentleman mentioned, of the 122 children with haemophilia who attended the school between 1970 and 1987, only about 30 are alive now. There have been much wider effects, too: the stigma that could be attached, the interrupted education, the long-term mental scarring for the people and their families, and the trauma through families that has lasted for decades. This is a story of lost childhoods and lost futures. It has been my privilege to meet a number of the Treloar’s boys over time. There is one gentleman in particular, Adrian Goodyear, with whom I have been in contact since I was first elected in 2010; he had previously been in contact with my predecessor Michael Mates for many years. In our 2010 debate, I read out a line from one of Ade’s emails to me that haunted me then and haunts me now: “We’ve now lost so many of our friends from the Treloar days—in fact, we stopped counting at 40”. I pay tribute to Ade, to all the Treloar’s boys and to everybody in this community who has kept up the fight, for their remarkable tenacity in seeking justice in the name and memory of their friends lost. I thank the Paymaster General for his continued and consistent positive engagement on the subject. He always comes to these events in person, which I think the House really appreciates. I have a few questions that I hope he will address later in the debate. First, I have been asked specifically to raise the lack of parity between bereaved parents whose child was over 18 and those whose child was younger. I hope that the Minister can comment on that point and on whether a change may be possible. On further elements of the award, I thank the Minister for his letter in response to our exchange at Cabinet Office questions about the special category mechanism and the psychological harm payments, but I continue to receive questions from my constituents about the unethical research awards. The increase in the amount is very welcome, but in our November 2024 debate I asked how the figures had been reached, and even with the higher number I am still being asked that question. Clearly one cannot put a value on this tragic loss or say that any amount of money could compensate it, but even if the answer is that there is no way of calculating such a number, it would be helpful to have that set out. I think IBCA has tried to engage well with MPs, which is welcome, but clearly the administration of the scheme needs to accelerate. Inevitably with these processes, things move relatively well at first with the more straightforward cases, but it becomes harder when we get on to the more complex cases. As the hon. Member for Eltham and Chislehurst says, we are talking about victims who are increasingly elderly and who, tragically, may die before they receive the compensation they have been promised.”
